Volunteering

Are you interested in assisting Supporting Families with Koolen-de Vries Syndrome? A number of volunteering opportunities exist and we would love to help you find a way to get involved.

Spread the Word

One of our main missions is to spread awareness and YOU are a huge asset in helping to spread the word! Wear some KOOL gear, snap up a KdVS tote bag, talk to your friends, family, doctors, and community about Koolen-de Vries Syndrome and send them to www.supportingkdvs.org! Participate in the annual KdVS Awareness Day on July 17.

Fundraising Committee

The Committee meets by conference call at least once per month with frequent communication the rest of the month including coordination with the Board and other committees.

If you are interested in learning more about the Fundraising Committee, please contact fundraising@supportingkdvs.org.

Marketing Committee

The marketing committee plans and develops literature about SFKDVS and Awareness Day activities and promotions, plans items to carry in the Kool Store, and works on the website.

The Committee meets by conference call at least once per month with frequent communication the rest of the month including coordination with the Board and other committees.

If you are interested in learning more about the Marketing Committee, please contact marketing@supportingkdvs.org.

Social Outreach Committee

The Social Outreach Committee maintains the SFKDVS Facebook page, generates the quarterly newsletter, maintains a family database, reaches out to new families, and works on the website.

The Committee meets by conference call at least once per month with frequent communication the rest of the month including coordination with the Board and other committees.

If you are interested in learning more about the Social Outreach Committee, please contact outreach@supportingkdvs.org.

Host a Fundraiser

Are you interested in hosting a fundraiser to help further the SFKDVS mission of Education, Awareness and Research? We have many families who have hosted fundraisers of all sizes and many different types. Our fundraising committee would be happy to talk to you about ideas! Fundraising is key to helping us generate funds to continue our work and we greatly appreciate your efforts. All board members and committee members are volunteers and we pledge to wisely use your donated funds.

Volunteer to help with an Event

Are you interested in helping with event planning and preparing for a gathering? We do not have a formal Events Committee yet, but we do have plans for a future committee. If you are interested in volunteering your services, please contact us at events@supportingkdvs.org!