Tri to be Kool Virtual Triathlon
Join Supporting Families with Koolen-de Vries Syndrome’s 2nd annual “Tri” to be Kool Virtual Triathlon!
For the month of May, SFKDVS will be conducting a triathlon that can be completed from anywhere around the world and you have 31 days to complete all events! We have set the required distances uniquely (1.7 mile swim, 21 mile run, and 31 mile bike) in order to promote awareness of Koolen-de Vries Syndrome (KdVS) which is caused by a microdeletion at 17q21.31 or mutation of the KANSL1 gene in the same location! Distances can be broken down at your convenience or can be completed at once; you have 31 days to complete the events!
You’ll receive a medal upon completion, a t-shirt, a bib to wear during your workouts (take pictures and post to help spread awareness) and access to the Facebook group for support.
Your support and funds help us to continue our mission: To educate, increase awareness and promote research for the support and enrichment of individuals living with Koolen-de Vries Syndrome and their families.
If you would like to get involved, head over to the Kool store to purchase your entry. After your purchase, please join the event Facebook Page (Tri to be Kool: Virtual Triathlon) for more details and to finish your sign up!