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2017 KdVS Patient Advocacy Summit

July 13 - July 15

Free - $50

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Welcome to the registration page for the first Koolen-de Vries Syndrome Patient Advocacy Summit. The Summit runs from July 13-15, 2017 in Memphis, TN and will include several events for families to connect and learn from doctors and other professionals as well as one another. This event will bring together the foremost experts on Koolen-de Vries Syndrome to discuss the latest research and educational strategies. Families will attend sessions to learn more about different topics associated with KdVS. Children will have the opportunity to bond and participate in age-appropriate programs.  (CHILDCARE PRE-REGISTRATION IS NOW CLOSED.)
If you are looking for information on registering for the Saturday evening Redbirds baseball game, visit the Plan Your Trip page.

Cancellation Policy:

Please request cancellation in writing for a full refund a minimum of 30 days prior to the event. Cancellation letters can be sent to: kdvsPAS@supportingkdvs.org

If you need assistance registering

Please email us at kdvsPAS@supportingkdvs.org if you have any questions about registration!

Details

Start:
July 13
End:
July 15
Cost:
Free - $50
Event Tags:
,
Website:
https://www.facebook.com/groups/151530691954349/

Organizer

Supporting Families with KdVS
Email:
kdvsPAS@supportingkdvs.org
Website:
www.supportingkdvs.org

Venue

Embassy Suites by Hilton Memphis
1022 South Shady Grove Road
Memphis, TN 38120 United States
+ Google Map
Phone:
901-684-1777
Website:
http://embassysuites.hilton.com/en/es/groups/personalized/M/MEMPEES-PAS-20170713/index.jhtml?WT.mc_id=POG