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2017 KdVS Patient Advocacy Summit
July 13 - July 15Free - $50
Welcome to the registration page for the first Koolen-de Vries Syndrome Patient Advocacy Summit. The Summit runs from July 13-15, 2017 in Memphis, TN and will include several events for families to connect and learn from doctors and other professionals as well as one another. This event will bring together the foremost experts on Koolen-de Vries Syndrome to discuss the latest research and educational strategies. Families will attend sessions to learn more about different topics associated with KdVS. Children will have the opportunity to bond and participate in age-appropriate programs. (CHILDCARE PRE-REGISTRATION IS NOW CLOSED.)
If you are looking for information on registering for the Saturday evening Redbirds baseball game, visit the Plan Your Trip page.
Please request cancellation in writing for a full refund a minimum of 30 days prior to the event. Cancellation letters can be sent to: kdvsPAS@supportingkdvs.org
If you need assistance registering
Please email us at kdvsPAS@supportingkdvs.org if you have any questions about registration!