2017 PATIENT ADVOCACY SUMMIT

 

The first ever Patient Advocacy Summit hosted by Supporting Families with Koolen-de Vries Syndrome will be held this July 13-15, 2017 in Memphis, Tennessee. This event will bring together the foremost experts on Koolen-de Vries Syndrome to discuss the syndrome and the latest KdVS research. Sessions will be held Friday for interested adults, medical professionals and other interested attendees. Children will have the opportunity to bond and participate in age-appropriate programs.

You won’t want to miss Friday’s sessions, but there is more! Always wanted to know more about St. Jude Children’s Research Hospital? You can take a tour and have lunch there on Thursday while some of our speakers are presenting to doctors, geneticists and researchers at the hospital. Attend the Thursday welcome meet & greet to start your networking. Join us on Friday for a Redbirds baseball game. Saturday will be a day of fun – kicking off with a Q&A session with some of the speakers and following up with the social gathering and lunch.

Thank you to our sponsors!

 

Gold Sponsor

Miraflex – visit them at http://miraflexglasses.net/

 

Bronze Sponsor

Cascade DAFO – visit them at https://www.cascadedafo.com/